Wednesday, January 21, 2015

The Pursuit of Health is Exhausting

It has been a year since I started running.  12 months.  For 10 of those months I didn't lose any weight.  Not one single ounce.  I changed eating habits, drank more water and spent hours running each week.

I gained friends, confidence, ability and endurance.  I lost... nothing.  Same weight.  Each time I weighed in I was 266 lbs.  Nothing moved.  Nothing changed.  My clothes didn't fit better.  My tummy wasn't flatter.  Nothing.

I was pretty frustrated.  Then the Thursday before the first Half Marathon of my life, I was told by the Urgent Care Dr that I wouldn't be running.  I thought he was joking but He wasn't.  I sat that one out.  Cheering from the sidelines.

That was in October.  I was sidelined due to breathing/oxygen issues.  This continued for a few more months and 3 more visits.  He then referred me to an Allergy/Asthma Specialist.  I was still not running.

In the meantime I had a free evaluation at a local clinic.  They offered BMI and blood pressure and a quick blood sugar test.  I just wanted my BMI numbers.  I got a bit of a scare.  The Blood Sugar numbers were VERY HIGH.

So, I came back in a few days for fasting blood work.  That was a bit disappointing as well so I found myself in the office of an Endocrinologist for the first time in my life.

He prescribed a new diet and then warned me that my numbers needed attention so when he saw me in January he fully expects I will be on at least 2 medicines.

Christmas happened.  It was so fun.  I love spending time with family.

I stuck to a very strict version of the diet he prescribed.  I lost 12 lbs.  I now weigh in at 254 consistently.  Still not running and no exercise as prescribed due to my cortisol numbers.

But the weight moved.  It budged. I was so happy!  Then it stalled and that is where I am for the past 6 weeks.  No idea why it moved for those first few weeks but thankful it did.

Meanwhile I met with the Allergist/Asthma Specialist this past Tuesday.  After tests it is shown that I am not allergic to anything but have Infection Induced Asthma.  The solution to this is 2 seperate inhalers twice a day each, nose spray twice a day and an acid reducing medicine.  This whole handful of medicines is costing me over $300/month.  Yes, that is with insurance.  I can't afford the stress of thinking about that so I don't.  I just take the meds which are in front of me and see where this all leads.

EXCEPT - I need to have a few handfuls of tests this week.  One is for Cushing's Syndrome/Disease.  No one warned me that one of my inhalers would conflict with this test.

I am guessing there is no way for individual drs to know what they are prescribing/ordering. I found out about this conflict due to doing some Dr. Googling and reading that this particular test is testing for steroid something or another.  Knowing that my inhaler was a type of steroid I called Walgreens, then the Endocrinologists office.

The answer is to stop all meds except the acid reducer.  Yesterday I couldn't get the answer to "how long to stop before testing." Today I was supposed to begin one of the tests.  This morning I get the answer that we need 7 days off the other meds.  SEVEN DAYS off the meds which allow me to breathe and which allow my chest to stop burning.  SEVEN DAYS *Sigh*

So, now my Endo Appt is in February.  I need to reschedule my tests for next week and yesterday was day one without breathing support.

I am exhausted.  Not just physically but internally.

Breathing is a MUST.

Knowing if I am Diabetic or have Cushings or whatever is a MUST.

Protecting my Kidneys (which are compromised) is a MUST.

I live in one body.  I don't have unlimited financial or childcare or other resources.

I am thankful for what I do have.  I am thankful that nothing we are pursuing will kill me in the next few weeks.  I am thankful for so many things.

BUT, I am tired and don't have much patience.

I want answers.  I want my body to work correctly.  I want to be healthy - me and a couple million other people at any given moment.

So, I wait.  Maybe a few more pounds will fall off.  Maybe the Acid Reducer will keep helping and the lungs won't hurt so much.  Maybe I will get rest and energy.

Exhausted = Me